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Lupus Community & Support 

An effective support system can improve a patient's overall quality of life, reinforce self-management skills, and decrease the feeling of isolation that often accompanies the disease. 

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For caregivers, finding their own support network is equally important for managing the stress of caring for someone with a chronic illness. 

GET THE SUPPORT YOU NEED

Online platforms and communities provide a valuable space for lupus patients and caregivers to connect and share their experiences. Reputable national organizations like the Lupus Foundation of America and the Hospital for Special Surgery also offer both virtual and in-person support groups and educational materials.

 

In addition, there are many Facebook groups dedicated to supporting those with lupus. 

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Online Communities

Inspire Lu[us Connect Logo

LupusConnect

MyLupusTeam logo
Smart Patients logo
The Mighty logo
reddit logo

LupusConnect

An online community run by the Lupus Foundation of America (LFA) where people with lupus and their loved ones can engage with one another to share experiences and find emotional support.

MyLupusTeam

A free social network specifically for people with lupus, MyLupusTeam allows members to create a profile and connect with others who have similar experiences through forums.

Smart Patients

An online community for patients and their families, Smart Patients provides a forum for discussing personal experiences with lupus and researching the latest medical science.

The Mighty

This online platform hosts forums for many chronic conditions, including a number of support groups related to lupus.

r/lupus on Reddit

 A subreddit where users can connect, ask for advice, and exchange stories about their lupus journey.

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In-Person Support Groups

LFA LOGO
HSS logo Represents Healthcare Solutions.
Kaleidoscope Fighting Lupus

Lupus Foundation of America Chapters

The LFA has multiple local chapters throughout the United States that offer in-person support groups, education programs, and other resources. You can search for a chapter near you on their website

Hospital for Special Surgery

HSS offers several free, in-person support groups including the SLE Workshop, a monthly session for people with lupus and their families in the New York Tri-State Area.

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To meet diverse needs, these programs are offered in English, Spanish, and Chinese, with content adapted for different cultural backgrounds and developmental stages.

Kaleidoscope Fighting Lupus

This organization holds monthly in-person groups in Portland, Oregon, and Springfield, Massachusetts. They can also help you find other organizations if you don't live in those areas.

Outside of the US visit - worldlupusfederation.org to find a support group near you

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