Lupus and the workplace

Can someone with lupus continue to work?
Yes, many people with lupus successfully continue their careers. It may require some planning, adjustments, and communication with employers and doctors. Your ability to work depends on the severity and type of your symptoms and how they impact your specific job duties. Some people may need to adjust their schedule or work environment, while others can continue without significant changes.

What symptoms of lupus can affect work?

Common lupus symptoms that can interfere with work include:

Fatigue: Feeling exhausted can make it difficult to complete shifts, especially those with long or irregular hours.
Joint and muscle pain: Standing or sitting for extended periods can worsen pain and make physically demanding jobs challenging.
Photosensitivity: Sensitivity to sunlight can pose a risk for those with outdoor jobs.
Brain fog: Issues with memory, concentration, and cognitive function can make fast-paced or detail-oriented work difficult.
Stress: High-stress work environments can trigger lupus flares.

What are "reasonable accommodations" under the Americans with Disabilities Act (ADA)?
Under the ADA, if lupus significantly affects your ability to work, your employer may be required to provide "reasonable accommodations". These are changes to the work environment or job that enable you to perform your duties without causing "undue hardship" to the employer.

Examples of reasonable accommodations for people with lupus may include:

A flexible schedule, such as remote work or modified hours.
More frequent rest breaks.
Ergonomic equipment, such as a special chair or keyboard.
Adjustments to lighting to reduce fluorescent light exposure.
Moving a workstation to a quieter area to minimize distractions.
Accessible parking.

Do I have to tell my employer that I have lupus?
No, you are not legally required to disclose your lupus diagnosis to your employer. However, the ADA's protections, including reasonable accommodations, only apply if your employer is aware of your condition. It's a personal decision, but discussing your needs with Human Resources can help secure the support you need.

What is the Family and Medical Leave Act (FMLA)?
The FMLA is a federal law that allows eligible employees to take up to 12 weeks of unpaid, job-protected leave for certain family and medical reasons, including a serious health condition like lupus. This can be a vital option for managing flares or medical emergencies while ensuring your job is protected and your health insurance continues.

Can I get Social Security Disability benefits for lupus?
Yes, lupus is a qualifying medical condition for Social Security Disability Insurance (SSDI) benefits. To qualify, you must show that your lupus and its symptoms prevent you from engaging in "substantial gainful activity" for at least 12 months. The Social Security Administration has specific criteria for lupus under its "Immune System Disorders" listing, which includes documentation of organ system involvement and ongoing symptoms like severe fatigue.

Where can I find more resources on working with lupus?
For more guidance on workplace accommodations and your rights, consider these resources:

The Job Accommodation Network (JAN): A free service from the U.S. Department of Labor that provides guidance on workplace accommodations.
The Lupus Foundation of America: Offers numerous resources and articles on managing lupus at work.
Your Healthcare Provider: Your rheumatologist or other doctors can provide documentation and recommendations to support accommodation requests.

Patients should consult their healthcare provider and consider legal counsel when needed.

*This is for informational purposes only. For medical advice or diagnosis, consult a professional.